Monday - Labor Day 2018
Ozzie started kindergarten the next day. Megan took him to get some last-minute school shopping done. I was in bed with headaches. So sick of this. It was labor day; clinics were closed. I called my brother to take me to urgent care, but Megan told me that they won’t help. If I wanted any kind of care I would need to go to the emergency room.
So that’s where she took me.
First off – nothing is an emergency in the emergency room. I lied in a cot as Ozzie read books and Megan played on her phone for hours. The doctor, or nurse, would come in about every hour to check on me, or try a different pain remedy. The doctor recommended a lumbar puncture (which is what they call a spinal tap now – I think because it sounds more gentile. Like ‘civil unrest’ sounds more gentile than ‘riots and looting’) to see if the worst headache I ever had the other night was an aneurysm, or as she called it, a ‘brain bleed.’
I figured 'if I had a brain bleed I’d be dead.' I was quite sick at the time, but that sounded good enough to me to NOT get the ‘lumbar puncture.’ I asked to be discharged from the E.R. and went home, and somehow fell asleep.
Tuesday 9/4/18
Ozzie’s big first day of school.
And I had a thick headache when the alarm woke me up. It hurt to walk, or move. Light hurt my eyes.
Megan wanted to do all of the first day of school photos, and I had to pull myself together enough to snap a few pictures, and then crawl back in bed to ice my head.
She drove Ozzie to school, came back home and drove me back to the emergency room.
I had a different doctor this time (it was only about 12 hours since I'd been there) and I liked this one better. She checked in with me more, and tried some different things than the night before; including a long Q-tip soaked in Lidocaine up my nostril (it felt like it touched my brain) for 10 minutes. It did nothing to the pain. When this doctor suggested a spinal tap, I took it.
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One of my favorite comedies |
My first spinal tap.
They had me sit up and lean over a bedside table. I wouldn’t call spinal taps ‘painful.’ It IS very uncomfortable, because you need to stay stock-still while they gently poke a needle into your spinal cord.
My memory starts to fade from this point through the next four days. I was in and out of consciousness. These memories are in clips.
The next clip I remember is being told that I have cryptococcal meningitis. They found it from the spinal tap. It’s a fungal meningitis. I had heard the term meningitis before, but had no idea what it was or did. I would have to look it up later, because it still hurt to look at my phone. Any light hurt my eyes and head.
I know that Megan went to pick up Ozzie from his 1st day of school at some point, and the next clip I remember is my mother waking me up in the E.R. My dad was there too. Megan had called them to tell them about the whole ordeal. I had an I.V. in my arm, and was waiting for space in a real room to open up. I realized that I was going to have to spend the (my first ever) night in the hospital.
Next clip - I was very uncomfortable in the ER cot. It was night time, and they still hadn’t found me a room.
I remember a dose of Dilaudid through my I.V. Dilaudid is the drug they’re always trying to score in Drugstore Cowboy. It did make things feel pretty cool for a minute.
I have a memory of my parents speaking up to get me a real hospital bed for the wait instead of the uncomfortable cot. I remember a ride in that real bed to my room, which I shared with an old man whose family was with him. It sounded like there were eight people on the other side of the curtain.
The next morning, the old man’s farts woke me up. I had gas too, and thought hey, I’m on death’s door. Now isn’t the time to hold them in. And we were like dueling (farting) banjos, but neither of us were laughing.
A doctor told me that I'd need an I.V. treatment once a day for 14 days, so I’d be in the hospital for 14 days. What?! 14 days?! I can’t.
Our wedding anniversary is 9/20, and we had a trip to Las Vegas planned. Plane tickets, hotel, Penn and Teller tickets, all bought and paid for.
Cancelled. (Luckily, we were able to recoup most of that)
On one of those first four days, stupid Dr. Smythe stopped by. He’d heard about my diagnosis, and wanted to apologize for not catching it when I told him about my symptoms (when he'd ordered the 1st MRI and said I was having an MS attack).
I developed meningitis because of the M.S. treatment I was on at the time - Gilenya. It suppresses the immune system. Everyone is exposed to this "fungus" every day. Almost everyone’s immune system is high enough where it doesn’t affect them. Mine was so low that it got me.
I remember another spinal tap in bed, and this time I was on my side in the fetal position. I had to pee really bad (another benefit of M.S. – overactive bladder), and sprung from bed as soon as he said the needle was out. Blood trickled down my back, and got on my bed sheets.
Tune in tomorrow for the conclusion of this incident of my life that gave me PTSD. Do I get more spinal taps? (Yes)
And we'll end it with a fun game.